Children’s Palliative Care: An International Case-Based Manual

Edited by: Julia Downing

ISBN: 978-0-620-51623-5

Price: ebook – £31.99 softcover book – £39.99

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This manual, edited by ICPCN enables individuals working in children’s palliative care globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC.  Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN).

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Palliative Care – Celebrating Nurses’ Contributions

This report was led by ICPCN and published by ICPCN, IAHPC and WHPCA in 2021 in recognition of the International Year of the Nurse and Midwife in 2020. Launched on World Health Day in 2021 it highlights the work of 27 nurses, some working in low- and middle-income countries, some in high income settings, some developing services, others working in humanitarian settings, some in clinical care, some in education, research, academia and advocacy.

Nurses play a key role in the provision of palliative care globally, and during the International Year of the Nurse and Midwife in 2020, we wanted to recognise this and celebrate their work. As we work to continue developing and strengthening palliative care, we have had the privilege of meeting nurses around the world working in the field, some who are newly qualified and full of enthusiasm, others who are nearing the end of their careers and are keen to pass on their knowledge and skills.

This report is a celebration of the pivotal role of nurses in palliative care across the globe. We hope that it will also serve as an inspiration to policymakers, health care administrators, and managers to support nurses so they can have a more prominent voice in health policymaking, education, and care provision.

Download the report here

The children’s palliative care provider of the future: A blueprint to spark, scale and share innovation

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Palliative Care, COVID-19 and Universal Health Coverage Report

Based on a survey conducted in June 2020, this report provides recommendations to governments to integrate palliative care into COVID-19 responses, train health care workers in palliative care and build back better through the integration of palliative care into health systems, including through Universal Health Coverage reforms. It is a moral imperative to ensure that adults and children are not experiencing avoidable serious health related suffering during the COVID-19 pandemic which could be alleviated through access to integrated and cost-effective palliative care. The survey was undertaken by ICPCN, WHPCA and PallCHASE.

Download the report here

Palliative Care and Universal Health Coverage Fact Sheet

The Palliative Care and Universal Health Coverage Fact Sheet, published in June 2018 was developed by WHPCA, IAHPC and ICPCN. The fact sheet information is based on the findings of the Lancet Commission Report on Palliative Care and Pain relief (2017).

Download the fact sheet here

Touching Rainbows

Touching Rainbows – Acknowledging the Child’s Voice in Palliative Care

Edited by: Julia Downing and Sue Boucher

ISBN: 978-0-620-51623-5

Price: US$25 (including 5$ postage and packaging per copy)

“Man is born with rainbows in his heart and you’ll never read him unless you consider rainbows.” 
Carl Sandburg

Touching Rainbows: Acknowledging the Child’s Voice in Palliative Care is an ICPCN publication in which children and family members of children living with life threatening or life limiting conditions, and sometimes their carers, share a slice of their difficult journey with great courage, honesty and openness. This is done through stories, poems, artwork and pictures.

These inspiring stories come from across the world and, where possible, have been written in the writer’s own language with an English translation. It is hoped they will touch and enrich the lives of many, encourage those travelling a similar path, and instil a sense of courage and joy, despite the many challenges and heartaches that come with this journey. These children and their families pass through many storms and dark days, but still somehow manage to aspire to reach out for the promise and beauty of the rainbow.

To order your copy of Touching Rainbows, please fill in the form below and pay using our PayPal account. Paypal accepts most major debit and credit cards from around the world and you do not need an account in order to use it.

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Research into the need for children’s palliative care

Assessment of the Need for Palliative Care for Children
Three country report: South Africa, Kenya and Zimbabwe – completed in 2013

In November 2013, UNICEF and ICPCN launched the results of a collaborative research project to quantify the need for children’s palliative care in three sub-Saharan countries – Kenya, South Africa and Zimbabwe.

The Report “Assessment of the Need for Palliative Care for Children. Three Country Report: South Africa, Kenya and Zimbabawe” was the first study to look at the prevalence of life-limiting illness and life-threatening conditions in countries in the developing world and compare this with the coverage of palliative care services, to identify the gap between them, and develop a methodology that can be used to estimate the global need.

The knowledge that so many children are suffering needlessly and dying in pain and so few children have access to palliative care services in these countries is something that should steel every one of us to action. This important research provides us not only with evidence of the enormous need but also a methodology that can be used by other countries to calculate their own needs and gaps in services.

By adapting the methodology used in this study, researchers can assess the need for children’s palliative care services in every country which will in turn lead to a clearer and more accurate picture of the global need for children’s palliative care.

Download the report here

The ICPCN has contributed to the following papers, books and publications and also has a YouTube channel where you can access further resources.