This book is being sold on a range of websites including Oxford University Press and can be purchased as an online edition or in print.

It:

• Identifies the medical, psychological, practical, and spiritual issues of caring for terminally ill children and their families
• Promotes a model of care that addresses the complex and multifaceted needs of children with life-threatening illnesses and their families
• Includes two new chapters looking in detail at ‘Decision Making’ and ‘Perinatal Care’ and a new section highlighting the emerging importance of ‘Palliative Care for Children in Humanitarian Crises’
• Has a new section providing the voices of two parents telling their stories, offering thoughtful recommendations to clinicians
• Is an Award Winner in the Paediatrics Category at the BMA Medicine Book Awards

Ce livre de Palliatifs Sans Frontière (PSF), une ONG sanitaire internationale de palliatifs, a trois objectifs : améliorer l’attention qui est donnée aux enfants et aux adolescents dans des conditions qui menacent ou limitent leur vie ; soutenir leurs familles pendant la maladie et dans la phase du deuil et promouvoir la solidarité oncologique et palliative pédiatrique avec les pays de moins de ressources. Il représente un effort international de 92 auteurs, beaucoup d’entre eux des professeurs universitaires y des pédiatres palliatifs, afin de trouver des manières de satisfaire les besoins des enfants et des familles en ces circonstances. Ses 59 chapitres se distribuent en 10 sections qui traitent les bases de SPP, la gestion des symptômes, le cancer des enfants et des adolescents, les SP dans d’autres situations, le soulagement de la souffrance, l’attention à la famille, aux nécessités psycho-sociales, le travail d’équipe et les professionnels, la coopération en oncologie et palliatifs, et la bioéthique et les droits des enfants dans des situations qui mettent en danger ou limitent leur existence.

Pour plus d’informations, cliquez ici

Paliativos Sin Fronteras considera que este libro puede ser un instrumento muy eficaz para proporcionar un mayor bienestar de los niños y adolescentes, reducir su sufrimiento y acrecentar el apoyo social a sus familias. Por estos motivos, trabaja por la cooperación internacional con países de recursos reducidos a través de la formación de profesionales en paliativos y dolor y el apoyo a la creación y mantenimiento de estructuras en estos campos.

Para más información, pulse aquí

This book is being sold on a range of websites including Springer and can be purchased as an ebook or in print.

This manual, edited by ICPCN enables individuals working in children’s palliative care globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC.  Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN).

Download here (English)

Download here (Greek)

在此下载（中文）

PLEASE NOTE: This book is made freely available by the author in order to improve the provision of Children’s Palliative Care around the world.  Please feel free to download it, copy it and send it to as many of your colleagues as you’d like.  However, please do not amend the content in any way.

If you would like to translate this book into a different language please contact ICPCN at admin@icpcn.org

A review of the book by Hannah Tearle, Senior Sister, Children’s Inpatient Unit,
Keech Hospice Care

The title of this book sums up its contents well. The book is made up of two parts. The first part is Dr Amery’s handbook and the second part is the Association of Paediatric Palliative Medicine Formulary (2015). Together this could be considered the bible of paediatric palliative care.

The format of the book has been designed so that it is easy to use and the informal writing style makes it easy for anybody to read and understand. Dr Amery’s handbook is split into 15 sections which cover all of the problems commonly faced by health care professionals when caring for children who are dying. Each section is then broken down further to give step by step instructions.

The book is derived from Dr Amery’s empirical research and twenty years experience along with other international contributors along with the available evidence. There is very little research carried out in the field of paediatric palliative care worldwide compared to other areas of medicine. It is a niche subject so bringing these specialists wealth of knowledge and experience together makes it an invaluable resource.

This handbook addresses communication, breaking bad news, playing, to symptom managing and self care. Each chapter has a title How do I… Using chapter six “How do I manage symptoms in children’s palliative care?” as an example will illustrate the format for the whole book as each chapter is structured in the same way.

Part six is the largest chapter, but is still broken down simply to give the answers to any question you may have regarding symptom management. It starts by stating what may already be known and then it moves onto the section with information that may be useful. The first symptom described is pain. Different ways of assessing pain is explored first referring to WHO (2013) Then it moves onto non pharmacological and pharmacological management of pain, the use of opioids and the different types of pain. The chapter carries on the same logical format discussing all other symptoms that may need managing such as seizures, vomiting and anxiety to name a few.

This handbook has been written for any health care professional across the world. Dr Amery has taken culture and different socioeconomic backgrounds into consideration. The handbook will soon become an indispensable tool for all healthcare professionals within the field of children’s palliative care.

This textbook is being sold through the Oxford University Press, and you can also download it for free as a pdf here as we want to see children’s palliative care develop worldwide.

Children’s Palliative Care in Africa is a textbook that responds to the enormous and growing need for children’s palliative care services in Africa and other resource-poor settings. This comprehensive textbook was the first to be written by practitioners working in Africa, specifically to meet the palliative care needs of children. It provides practical guidance by improving access to, and delivery of, palliative care in this demanding setting. Written by a group with wide experience of caring for children with life-limiting illnesses in Africa, and edited by Dr. Justin Amery, the textbook addresses key palliative care themes, which are crucial to expanding the provision of children’s palliative care.

The book is particularly suitable for:

• Those working with children with HIV/AIDS (for whom palliative care should be an essential part of treatment);
• Those working in the adult palliative care sector (many of whom also care for children);
• Those working in other paediatric and child health specialities.

While the book is primarily aimed at health and social care professionals, and is written with sufficient depth to be of use to specialists, its style is accessible for a range of other people concerned and involved in the care and treatment of children with life-limiting illnesses