Uganda Children’s Palliative Care Nurses Fellowship Programme

The Uganda Children’s Palliative Care Nurses Leadership Fellowship Programme (UCPCNLFP) aims to develop leaders within children’s palliative care in Uganda. Leadership is important in the ongoing development of children’s palliative care within Uganda. It is hoped that by developing children’s palliative care nurse leaders, we will further support the ongoing development and leadership of children’s palliative care, and ultimately improve the quality of life of those children needing palliative care and their families.

The UCPCNLFP is focused on the development of nurse leaders from different parts of the country, different types of organisations, and working with children in the hospital and community settings as well as nurse trainers. It is being run by a partnership between the University of Edinburgh, the Palliative care Education and Research Consortium (PcERC) and the International Children’s Palliative Care Network (ICPCN), funded through a grant by the Burdett Trust for Nursing.

Week 1: 24th-26th October 2022

1. Introduction to the fellowship programme, children’s palliative care and models of care Prof Julia Downing Download the presentation here Watch the recording of the session here
2. Play and development in children’s palliative care Florence Nalutaaya Sserwadda Download the presentation here Watch the recording of the session here
3. You can communicate with children and breaking bad news Dr Peace Bagasha Download the presentation here and here Watch the recording of the session here
4. Palliative care for adolescents Prof Julia Downing Download the presentation here Watch the recording of the session here
5. You can offer psychosocial and spiritual care and support to children Took Friday Santiago Download the presentation here Watch the recording of the session here
6. You can assess pain in children Florence Nalutaaya Sserwadda Download the presentation here Watch the recording of the session here
7. You can control and manage pain in children Liz Nabirye Download the presentation here Watch the recording of the session here
8. Myths around morphine and its use in children Liz Nabirye Download the presentation here Watch the recording of the session here
9. You can assess and manage symptoms in children Dr Liz Namukwaya Download the presentation here Watch the recording of the session here
10. Supporting children and their families Josephine Kabahweza Download the presentation here Watch the recording of the session here

 

Week 2: 8th-9th December 2022

11. Rehabilitation in palliative care Sue Murr Download the presentation here Watch the recording of the session here
12. Sharing of experiences and challenges.

Patient case study and discussion

 Florence Nalutaaya Sserwadda – –
13. Ethical issues in children’s palliative care Prof Julia Downing Download the presentation here Watch the recording of the session here
14. Teamwork and caring for the caregivers Josephine Kabahweza Download the presentation here Watch the recording of the session here
15. Advanced care planning and end-of-life care Florence Nalutaaya Sserwadda Download the presentation here Watch the recording of the session here
16. Grief and bereavement support Liz Nabirye Download the presentation here Watch the recording of the session here
18. Advocacy and awareness Florence Nalutaaya Sserwadda Download the presentation here Watch the recording of the session here

CPC Resources

Some of the resources mentioned during the workshop can be found here:

  1. A really practical handbook of children’s palliative care
  2. Children’s palliative care in Africa
  3. Beating_pain (Eng)
  4. Communication with children and adolescents about the diagnosis of their own life-threatening condition
  5. Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent
  6. A proposed global framework for paediatric communication research
  7. Communication-Pocket Guide
  8. Peadiatric protocols Uganda
  9. EOL Checklist
  10.  Integrating palliative care and symptom relief into paediatrics: A WHO guide for health care planners, implementers and managers
  11. International standards for pediatric palliative care: from IMPaCCT to GO-PPaCS.
  12. Paediatric Palliative Care in Resource-Poor Countries.
  13. Pediatric Pain Management in Palliative Care
  14. The Role of Play in Children’s Palliative Care
  15. TfSL-A-Guide-to-Children’s-Palliative-Care-Fourth-Edition-FINAL-SINGLE-PAGES
  16. Global Atlas of Palliative Care. 2nd Edition.
  17. APCA Atlas of palliative care in Africa.
  18. ICPCN’s e-learning programme

Children’s Palliative Care: An International Case-Based Manual can be purchased here.