Nominated contact first name
Shirley
Nominated contact surname
Lowe
Address
10 Mirwani Rd Sunninghill
2157
Country
South Africa
Telephone
072 476 7552
Brief description of organisation

We aim to ensure that all rare disease patients in South Africa receive access to treatment and supportive care for improved quality of life.

Type of service offered
Advocacy, Campaigning/lobbying, Counselling/bereavement, Education, Family support, Help/Information/advice, Public awareness, Training