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Nominated contact first name
Shirley
Nominated contact surname
Lowe
Address
63 Peter Place, Bryanston, 2191
Country
South Africa
Telephone
072 476 7552
Website address
http://www.rarediseases.co.za/
Brief description of organisation

We aim to ensure that all patients impacted by rare diseases and congenital disorders in South Africa receive access to treatment and supportive care for improved quality of life.

Type of service offered
Advocacy, Campaigning/lobbying, Counselling/bereavement, Education, Family support, Help/Information/advice, Public awareness, Training