The diagnosis of a serious illness in a child brings with it a marked impact not only on the child but also on his or her family group and all those around him or her, including health care personnel. The threats to the child’s integrity are multiple: the pain and discomfort produced by the symptoms, the changes in their daily activities, the limitations to lead a normal life, in their social context, and the difficulties in communication. This course will review how to assess and mitigate distress in children, tools for the assessment of distress, and ways to support the family and how professionals can help to ethically guide families in these diverse circumstances.
E-Lesson 30 HL
MODULE 1-2 ALLEVIATING SUFFERING. CARE FOR THE FAMILY AND PSYCHOSOCIAL NEEDS
UD 01 Suffering in children with chronic or life-limiting illnesses UD 02 Suffering and thirst in children with chronic or life-limiting illnesses
UD 02 Suffering and sedation: where to care? At home or in hospital?
UD 03 The pain of the soul in palliative care; Spiritual care of children and parents
UD 04 Managing psychosocial aspects in palliative care: paediatric patients, their siblings, their parents and you, the health professional.
UD 05 Cinema as a tool for understanding the psychosocial needs of children and adolescents.
Cinema, a good medium to learn how to take care of the human being
UD 06 Cerebral palsy in the cinema
UD 07 The child in the face of death. The needs of the family after death
UD 08 Parents’ mourning after the death of a child
UD 09 Children’s grief after the loss of their loved ones
UD 10 The value of support groups in the death of a child.
Webinar on children’s grief
E-lesson 30 HL
TEAMWORK AND COOPERATION BETWEEN ONCOLOGY AND PALLIATIVE CARE
MODULE 3-4 TEAMWORK AND PROFESSIONALS
UD 01 Teamwork in the care of the palliative child-adolescent and his or her family
UD 02 Burnout and recommended measures for health professionals to cope with the care of children and young people in palliative care
UD 03 Empathy burnout: risk and challenge in paediatric palliative care professionals. Growing old without burnout
UD 04 Recommended reading in palliative care and PPC.
UD 05 The emotional accompaniment of an adolescent girl
UD 06 Family psychological intervention in oncological palliative care.
UD 07 Psychological support for a terminally ill child.
MODULE ONCOLOGY AND PALLIATIVE CARE COOPERATION
UD 08 The need for oncological and palliative solidarity with children and adolescents in poor and middle-income countries
UD 09 Palliative voluntary work and solidarity in childhood and adolescence
UD 10 Experiences of a volunteer psychologist in Cameroon.
UD 10 Webimar . Beyond the hill and beyond the jungle, Documentary and colloquium
E-Lesson 30 HL
MODULE 5 10. BIOETHICS AND RIGHTS
UD 01 C. Palliative care in the paediatric intensive care unit. Ethical dilemmas
UD 02 Between cure and care in Neonatology. Limits of intensive care, ethical principles and challenges of paediatric palliative care.
UD 03 Limiting therapeutic effort. Webinar
UD 04 History of children’s rights in illness and terminality .
UD 05 Rights of sick children and adolescents. Caregivers’ rights.
UD 06 Clinical Cases Reviews.
UD 07 Video-lessons – Decision-making.
UD 08 Some notes on medical practice in the tropics.
UD 09 Possibilities of international cooperation to improve the palliative situation of children in poor and resource-poor countries.
UD 10 Webinar on decision-making and goals of care.
QUIZZES AND SURVEYS
COMPLEMENTARY BIBLIOGRAPHY, VIDEOS AND WEBINARS. REQUESTED SEAFORMEC- EUROPEAN COMMUNITY CREDITS
PRICE 130 € (EUROS)
For more information visit www.paliativossinfronteras.org