Children’s Palliative Care Training in Moldova
Session | Presentation |
1. Introduction to the course | Presentation Introduction and Aims |
2. Introduction to children’s palliative care | Presentation What is CPC |
3. Communicating with children, breaking challenging news and goals of care discussions | Presentation Communication |
4. Pain assessment and management in children | Presentation Pain |
5. Specific issues related to neonatal PC and transitioning to adult services. | Presentation Neonates and Transition |
6. Psychosocial and Spiritual issues | Presentation Psychosocial and Spiritual |
7. General Symptom Management | Presentation Symptom Management |
8. Grief and Bereavement | Presentation Grief and Bereavement |
9. End of life care | Presentation End of Life Care |
10. Team collaboration and effectiveness | Presentation Team Collaboration |
11. Self-care for professionals working in CPC | Presentation Self Care |
12. Integration of children’s palliative care into the health care systems: Key components and considerations | Presentation Integration |
We hope that this list of resources will be helpful:
WHO resources
WHO (2012) WHO guidelines on the pharmacological treatment of persisting pain in children with medical illnesses or ВОЗ_финальный
WHO 2016. Planning and implementing palliative care services: A guide for programme managers
WHO 2017. Building Integrated Palliative Care Programs and Services
WHO 2018 Integrating palliative care and symptom relief into paediatrics: A WHO guide for health care planners, implementers and managers or Интеграция паллиативной помоЩИ в педиатрическую практику
WHO 2020. Guidelines on the management of chronic pain in children or Рекомендации по лечению хронического болевого синдрома у детей
WHO 2021 Universal Health Coverage
WHO. 2021. Assessing the development of palliative care worldwide: A set of actionable indicators
WHO 2021. World Health Organization Model List of Essential Medicines for Children. 8th List.
WHO Global Initiative for Childhood Cancer: An Overview
International CPC Documents
APPM (2023) Management of Agitation in Children and Young People in the Palliative Care Setting
APPM (2023) Management of Seizures in Children and Young People in the Palliative Care Setting
APPM (2020) APPM Master Formulary (5th Edition) or ФОРМУЛЯР ЛЕКАРСТВЕННЫХ СРЕДСТВ 5-е издание
APPM and Together for Short Lives (2022) Basic Symptom Control in Paediatric Palliative Care (10th Edition)
Arias-Casais N, Garralda E, Pons JJ, Marston J, Chambers L, Downing J, Ling J, Rhee JY, de Lima L, Centeno C. (2020) Mapping paediatric palliative care development in the WHO European region: Children living in low-middle income countries are less likely to access it. Journal of Pain and Symptom Management 60(4):746-753.
Arias-Casais N et al. EAPC Atlas of Palliative Care in Europe 2019
Barker et al (2019)Prescribing Medicines for Children: From drug development to practical administration Pharmaceutical Press
Benini F, Pappadatou D, Bernada M, Craig F, De Zen L, Downing J, Drake R, Freidrichsdorf S, Garros D, Giacomelli L, Lacerda A, Lazzarin P, Marceglia S, Marston J, Mukaden MA, Papa S, Parravicini E, Pellegatta F, Wolfe J. (2021) International standards for pediatric palliative care: from IMPaCCT to GO-PPaCS. Journal of Pain and Symptom Management. 63(5): e529-e543.
Boucher S, Downing J, Shemilt R. (2014) The Role of Play in Children’s Palliative Care Children2014, 1(3), 302-317;
Chan et al. (2022) Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice Palliative Medicine 2022, Vol. 36(1) 30–43
Connor SR, Downing J, Marston J. (2017) Estimating the global need for palliative care for children: A cross-sectional analysis. Journal of Pain and Symptom Management. 53(2):171-177.
Connor SR (Ed) 2020 Global Atlas of Palliative Care. 2nd Edition. London, UK.
Daniels A, Downing J. (2018) Increasing access to children’s palliative care education through e-learning: a review of the ICPCN experience. International Journal of Palliative Nursing. 24(7): 351-358.
Downing J, Birtar D, Chambers L, Drake R, Gelb B and Kiman R (2012) Children’s palliative care: a global concern.International Journal of Palliative Nursing 18(3); 109-114.
Downing J, Jassal SS, Matthews L, Britts H and Friedrichsdorf SJ. (2015) Pediatric Pain Management in Palliative Care. Pain Management. 5(1): 23-25. Doi:
Downing J, Boucher S, Daniels A, Nkosi B. (2018) Paediatric Palliative Care in Resource-Poor Countries. Children 5:27.
Finkelstein EA, Bhadelia A, Goh C, Baird D, Singh R, Bhatnagar S, Connor SR. 2022. Cross Country Comparison of Expert Assessment of the Quality of Death and Dying 2021. Journal of Pain and Symptom Management 63(4): e419-429
Goldschneider et al. (2014) Pain care for patients with epidermolysis bullosa: best care practice guidelines BMC Medicine 2014, 12:178
Harrop E and Kirsch R. (2020) Cardiorespiratory symptoms. Oxford Textbook of Children’s Palliative Care, Oxford UK.
Harrop E and Edwards C (2013) How and when to refer a child for specialist paediatric palliative care Arch Dis Child Educ Pract Ed 2013;98:202–208.
Knapp C, Woodworth L, Wright M, Downing J, Drake R, Fowler-Kerry S, Hain R and Marston J. (2011) Pediatric Palliative Care Provision Around the World: A Systematic Review.Pediatric, Blood and Cancer. 56 (7):361-368.
Knapp C, Madden V, Marston J, Midson R, Murphy A and Shenkmen E (2009) Innovative pediatric palliative care programs in four countries. Journal of Palliative Care. 25(2): 132-136.
Knaul FM, Farmer PE, Krakauer EL, De Lima, L, Bhadelia A, Kwete XJ, Arreola-Ornelas H, Gómez-Dantés O, Rodriguez NM, Alleyne GAO, Connor SR, Hunter DJ, Lohman L, Radbruch L,del Rocío Sáenz Madrigal M, Atun R, Foley KM, Frenk J, Jamison DT, Rajagopal MR, on behalf of the Lancet Commission on Palliative Care and Pain Relief Study Group. 2018 Alleviating the access abyss in palliative care and pain relief – an imperative of universal health coverage: the Lancet Commission report. The Lancet. 391: 1391-454.
Lohman D, Cleary J, Connor S, De Lima L, Downing J, Marston J, Morris C, Pardy S, and Pettus K (2022) Advancing Global Palliative Care over Two Decades: Health System Integration, Access to Essential Medicines, and Pediatrics. Journal of Pain and Symptom Managemen 64(1): 58-69.
Liossi et al A systematic review of measures of breakthrough pain and their psychometric properties JPSM
Neilsen S, Randall D, McNamara K, Downing J. (2021) Children’s palliative care education and training: developing an education standard framework and audit. BMC Med Educ 21:539.
NICE (2016) End of life care for infants, children and young people with life-limiting conditions: planning and management NICE Guidelines, UK.
Pettus K, De Lima L, Maurer M, Husain A, Connor S, Torode J, Ling J, Downing J, Rajagopal MR, Radbruch L, Pastrana T, Luyirika EB, Goh C, Marstin K and Cleary J. (2019) Ensuring and Restoring Balance on access to Controlled Substances for Medical and Scientific Purposes: Joint Statement from Palliative Care Organizations. Journal of Pain & Palliative Care Pharmacotherapy, 32:2-3, 124-128.
Roland, J., Lambert, M., Shaw, A., Williams, I, Dale-Harris L., Fontana G. (2022) The children’s palliative care provider of the future: A blueprint to spark scale and share innovation UK: Imperial College London.
Savva N, Krasko O, Knapp C, Downing J, Fowler-Kerry S and Marston J. (2014) How Can We Improve Pain Control in Children Over the World? Results of International Multiprofessional ICPCN Survey. Pain Medicine. 15(7): 1238-1239 or Приоритетные направления деятельности государственных и общественных организаций по улучшению ситуации с обезболиванием у детей
Sutherland E et al. (2020) Orodispersible and transmucosal alternative medications for symptom control in adults BMJ Supportive & Palliative Care 2020;0:1–11
Together for Short Lives. A guide to children’s palliative care
Together for Short Lives (2019) Caring for a child at end of life – a guide for professionals on the care of children and young people
Together for Short Lives (2011) A Care Pathway to Support Extubation within a Children’s Palliative Care Framework
Todorovic A (2016) Palliative care is not just for those who are dying BMJ 2016;353:i2846
10 facts about children’s suffering and need for palliative care
WHPCA. Palliative care and Universal Health Coverage Fact Sheet
Useful Guides
Serious Illness Conversation Guide
End of Life Care for Children and Young People
Perinatal Palliative Care
АБВ ПЕРИНАТАЛЬНОЙ ПАЛЛИАТИВНОЙ ПОМОЩИ
Алгоритм перинатального сопровождения детей, нуждающихся в паллиативной помощи
Algoritmy otsenki i lecheniya boli 2020
ВРОЖДЕННАЯ ДИАФРАГМАЛЬНАЯ ГРЫЖА: ПЕРИНАТАЛЬНАЯ ПАЛЛИАТИВНАЯ ПОМОЩЬ
Практическое руководство по оказанию паллиативной помощи в отделении новорожденных
Sidgwick P et al. (2017) Fifteen-minute consultation: perinatal palliative care Arch Dis Child Educ Pract Ed 2017;102:114–116.
CPC Book
Amery J (Editor) A Really Practical Handbook of Children’s Palliative Care. Lulu.com or Русский
Другие ресурсы, доступные на русском языке, можно найти здесь
Other resources available in Russian can be found here,