Children's Palliative Care Training in Moldova - May 2023 - Resources Page - ICPCN Website

Children’s Palliative Care Training in Moldova

Session	Presentation
1. Introduction to the course	Presentation Introduction and Aims
2. Introduction to children’s palliative care	Presentation What is CPC
3. Communicating with children, breaking challenging news and goals of care discussions	Presentation Communication
4. Pain assessment and management in children	Presentation Pain
5. Specific issues related to neonatal PC and transitioning to adult services.	Presentation Neonates and Transition
6. Psychosocial and Spiritual issues	Presentation Psychosocial and Spiritual
7. General Symptom Management	Presentation Symptom Management
8. Grief and Bereavement	Presentation Grief and Bereavement
9. End of life care	Presentation End of Life Care
10. Team collaboration and effectiveness	Presentation Team Collaboration
11. Self-care for professionals working in CPC	Presentation Self Care
12. Integration of children’s palliative care into the health care systems: Key components and considerations	Presentation Integration

We hope that this list of resources will be helpful:

WHO resources

WHO (2012) WHO guidelines on the pharmacological treatment of persisting pain in children with medical illnesses or ВОЗ_финальный

WHO 2014. World Health Assembly Resolution; Strengthening of palliative care as a component of comprehensive care throughout the life course

WHO 2016. Planning and implementing palliative care services: A guide for programme managers

WHO 2017. Building Integrated Palliative Care Programs and Services

WHO 2017. World Health Assembly Resolution: Cancer prevention and control in the context of an integrated approach

WHO 2018 WHO guidelines for the pharmacological and radiotherapeutic management of cancer pain in adults and adolescents

WHO 2018. Integrating palliative care and symptom relief into the response to humanitarian emergencies and crises: A WHO guide

WHO 2018. Integrating palliative care and symptom relief into primary health care: A WHO guide for planners, implementers and managers

WHO 2018 Integrating palliative care and symptom relief into paediatrics: A WHO guide for health care planners, implementers and managers or Интеграция паллиативной помоЩИ в педиатрическую практику

WHO 2020. Guidelines on the management of chronic pain in children or Рекомендации по лечению хронического болевого синдрома у детей

WHO 2021 Universal Health Coverage

WHO. 2021. Assessing the development of palliative care worldwide: A set of actionable indicators

WHO 2021. World Health Organization Model List of Essential Medicines for Children. 8^th List.

WHO Global Initiative for Childhood Cancer: An Overview

International CPC Documents

APPM (2023) Management of Agitation in Children and Young People in the Palliative Care Setting

APPM (2023) Gastrointestinal Dystonia in children and young people with severe neurological impairment in the palliative care setting

APPM (2023) Management of Seizures in Children and Young People in the Palliative Care Setting

APPM (2020) APPM Master Formulary (5^th Edition) or ФОРМУЛЯР ЛЕКАРСТВЕННЫХ СРЕДСТВ 5-е издание

APPM and Together for Short Lives (2022) Basic Symptom Control in Paediatric Palliative Care (10^th Edition)

Arias-Casais N, Garralda E, Pons JJ, Marston J, Chambers L, Downing J, Ling J, Rhee JY, de Lima L, Centeno C. (2020) Mapping paediatric palliative care development in the WHO European region: Children living in low-middle income countries are less likely to access it. Journal of Pain and Symptom Management 60(4):746-753.

Arias-Casais N et al. EAPC Atlas of Palliative Care in Europe 2019

Barker et al (2019)Prescribing Medicines for Children: From drug development to practical administration Pharmaceutical Press

Benini F, Pappadatou D, Bernada M, Craig F, De Zen L, Downing J, Drake R, Freidrichsdorf S, Garros D, Giacomelli L, Lacerda A, Lazzarin P, Marceglia S, Marston J, Mukaden MA, Papa S, Parravicini E, Pellegatta F, Wolfe J. (2021) International standards for pediatric palliative care: from IMPaCCT to GO-PPaCS. Journal of Pain and Symptom Management. 63(5): e529-e543.

Boucher S, Downing J, Shemilt R. (2014) The Role of Play in Children’s Palliative Care Children2014, 1(3), 302-317;

Chan et al. (2022) Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice Palliative Medicine 2022, Vol. 36(1) 30–43

Connor SR, Downing J, Marston J. (2017) Estimating the global need for palliative care for children: A cross-sectional analysis. Journal of Pain and Symptom Management. 53(2):171-177.

Connor SR (Ed) 2020 Global Atlas of Palliative Care. 2^nd Edition. London, UK.

Daniels A, Downing J. (2018) Increasing access to children’s palliative care education through e-learning: a review of the ICPCN experience. International Journal of Palliative Nursing. 24(7): 351-358.

Downing J, Birtar D, Chambers L, Drake R, Gelb B and Kiman R (2012) Children’s palliative care: a global concern.International Journal of Palliative Nursing 18(3); 109-114.

Downing J, Jassal SS, Matthews L, Britts H and Friedrichsdorf SJ. (2015) Pediatric Pain Management in Palliative Care. Pain Management. 5(1): 23-25. Doi:

Downing J, Boucher S, Daniels A, Nkosi B. (2018) Paediatric Palliative Care in Resource-Poor Countries. Children 5:27.

Finkelstein EA, Bhadelia A, Goh C, Baird D, Singh R, Bhatnagar S, Connor SR. 2022. Cross Country Comparison of Expert Assessment of the Quality of Death and Dying 2021. Journal of Pain and Symptom Management 63(4): e419-429

Goldschneider et al. (2014) Pain care for patients with epidermolysis bullosa: best care practice guidelines BMC Medicine 2014, 12:178

Harrop E and Kirsch R. (2020) Cardiorespiratory symptoms. Oxford Textbook of Children’s Palliative Care, Oxford UK.

Harrop E and Edwards C (2013) How and when to refer a child for specialist paediatric palliative care Arch Dis Child Educ Pract Ed 2013;98:202–208.

Knapp C, Woodworth L, Wright M, Downing J, Drake R, Fowler-Kerry S, Hain R and Marston J. (2011) Pediatric Palliative Care Provision Around the World: A Systematic Review.Pediatric, Blood and Cancer. 56 (7):361-368.

Knapp C, Madden V, Marston J, Midson R, Murphy A and Shenkmen E (2009) Innovative pediatric palliative care programs in four countries. Journal of Palliative Care. 25(2): 132-136.

Knaul FM, Farmer PE, Krakauer EL, De Lima, L, Bhadelia A, Kwete XJ, Arreola-Ornelas H, Gómez-Dantés O, Rodriguez NM, Alleyne GAO, Connor SR, Hunter DJ, Lohman L, Radbruch L,del Rocío Sáenz Madrigal M, Atun R, Foley KM, Frenk J, Jamison DT, Rajagopal MR, on behalf of the Lancet Commission on Palliative Care and Pain Relief Study Group. 2018 Alleviating the access abyss in palliative care and pain relief – an imperative of universal health coverage: the Lancet Commission report. The Lancet. 391: 1391-454.

Lohman D, Cleary J, Connor S, De Lima L, Downing J, Marston J, Morris C, Pardy S, and Pettus K (2022) Advancing Global Palliative Care over Two Decades: Health System Integration, Access to Essential Medicines, and Pediatrics. Journal of Pain and Symptom Managemen 64(1): 58-69.

Liossi et al A systematic review of measures of breakthrough pain and their psychometric properties JPSM

Neilsen S, Randall D, McNamara K, Downing J. (2021) Children’s palliative care education and training: developing an education standard framework and audit. BMC Med Educ 21:539.

NICE (2016) End of life care for infants, children and young people with life-limiting conditions: planning and management NICE Guidelines, UK.

Pettus K, De Lima L, Maurer M, Husain A, Connor S, Torode J, Ling J, Downing J, Rajagopal MR, Radbruch L, Pastrana T, Luyirika EB, Goh C, Marstin K and Cleary J. (2019) Ensuring and Restoring Balance on access to Controlled Substances for Medical and Scientific Purposes: Joint Statement from Palliative Care Organizations. Journal of Pain & Palliative Care Pharmacotherapy, 32:2-3, 124-128.

Roland, J., Lambert, M., Shaw, A., Williams, I, Dale-Harris L., Fontana G. (2022) The children’s palliative care provider of the future: A blueprint to spark scale and share innovation UK: Imperial College London.

Savva N, Krasko O, Knapp C, Downing J, Fowler-Kerry S and Marston J. (2014) How Can We Improve Pain Control in Children Over the World? Results of International Multiprofessional ICPCN Survey. Pain Medicine. 15(7): 1238-1239 or Приоритетные направления деятельности государственных и общественных организаций по улучшению ситуации с обезболиванием у детей

Sutherland E et al. (2020) Orodispersible and transmucosal alternative medications for symptom control in adults BMJ Supportive & Palliative Care 2020;0:1–11

Together for Short Lives. A guide to children’s palliative care

Together for Short Lives (2019) Caring for a child at end of life – a guide for professionals on the care of children and young people

Together for Short Lives (2011) A Care Pathway to Support Extubation within a Children’s Palliative Care Framework

Todorovic A (2016) Palliative care is not just for those who are dying BMJ 2016;353:i2846

10 facts about children’s suffering and need for palliative care

WHPCA. Palliative care and Universal Health Coverage Fact Sheet