Faith and dying – Joshua’s story
This latest Little Stars film released earlier this week was filmed in Kuala Lumpur, Malaysia, and features the story of a family caring for a young boy, Joshua, who suffers from MECP2 duplication syndrome. There is no curative treatment for MECP2 duplication syndrome and when he became very ill they took Joshua to the hospital where, initially, medical staff did not want to care for him in the Intensive Care Unit (ICU). After finally convincing them to admit him to ICU, he spent two months there and in the High Dependency Unit, with Yoong Teck seldom leaving his side.
Not expected to survive, Joshua’s oxygen levels did improve enough for him to be transferred to the general ward, and later discharged. This is when Hospice Malaysia stepped in and assisted the family by providing them with the holistic support they so desperately needed.